RESEARCH PAPER
Individual beliefs and family resilience among people living with HIV
1
Universitas Airlangga, Jawa, Indonesia
2
Universitas Muhammadiyah Surabaya, Jawa, Indonesia
3
Dr. Soetomo Teaching Hospital, Jawa, Indonesia
Submission date: 2022-08-28
Final revision date: 2022-10-10
Acceptance date: 2022-10-26
Online publication date: 2025-05-05
HIV & AIDS Review 2025;24(2):142-147
KEYWORDS
TOPICS
ABSTRACT
Introduction:
Human immunodeficiency virus (HIV) has become a manageable chronic disease with the help of antiretroviral therapy (ART). Positive individual beliefs of people living with HIV (PLWH) is increasing, shaping a great resilience. Resilience occur not only in PLWH, but also in their families. Family resilience affect PLWH confidence to manage their health. This study aimed to analyze the relationship between individual beliefs and family resilience among PLWH.
Material and methods:
Cross-sectional survey among 100 PLWH using purposive sampling was used in the present study. Instrument was adopted from family empowerment scale (FES) questionnaire. Depression management, adherence to treatment, managing symptoms, communication with healthcare providers, social support, and fatigue were assessed to examine the relationship with family resilience. Spearman’s rho test was applied for data analysis.
Results:
Most of the respondents were males (51%) and between 30-49 years old (72%). Communication with healthcare providers (p = 0.01, r = 0.271), social support (p = 0.00, r = 0.375), adherence to treatment (p = 0.04, r = 0.283), and family resilience had a moderate relationship, while depression management (p = 0.06, r = 0.271), symptoms management (p = 0.10, r = 0.256), and fatigue management (p = 0.16, r = 0.108) did not correlate.
Conclusions:
Consistent medical care treatment is the key to viral suppression; therefore, interventions are needed to simultaneously address key factors at different levels. Furthermore, poor adherence results in negative outcomes, including morbidity and mortality as well as an increased likelihood of transmitting HIV to sexual or drug-using partners.
Human immunodeficiency virus (HIV) has become a manageable chronic disease with the help of antiretroviral therapy (ART). Positive individual beliefs of people living with HIV (PLWH) is increasing, shaping a great resilience. Resilience occur not only in PLWH, but also in their families. Family resilience affect PLWH confidence to manage their health. This study aimed to analyze the relationship between individual beliefs and family resilience among PLWH.
Material and methods:
Cross-sectional survey among 100 PLWH using purposive sampling was used in the present study. Instrument was adopted from family empowerment scale (FES) questionnaire. Depression management, adherence to treatment, managing symptoms, communication with healthcare providers, social support, and fatigue were assessed to examine the relationship with family resilience. Spearman’s rho test was applied for data analysis.
Results:
Most of the respondents were males (51%) and between 30-49 years old (72%). Communication with healthcare providers (p = 0.01, r = 0.271), social support (p = 0.00, r = 0.375), adherence to treatment (p = 0.04, r = 0.283), and family resilience had a moderate relationship, while depression management (p = 0.06, r = 0.271), symptoms management (p = 0.10, r = 0.256), and fatigue management (p = 0.16, r = 0.108) did not correlate.
Conclusions:
Consistent medical care treatment is the key to viral suppression; therefore, interventions are needed to simultaneously address key factors at different levels. Furthermore, poor adherence results in negative outcomes, including morbidity and mortality as well as an increased likelihood of transmitting HIV to sexual or drug-using partners.
REFERENCES (28)
1.
Gottert A, Friedland B, Geibel S, Nyblade L, Baral SD, Kentutsi S, et al. The people living with HIV (PLHIV) resilience scale: development and validation in three countries in the context of the PLHIV Stigma Index. AIDS Behav 2019; 23 (Suppl 2): 172-182.
2.
Jaiswal J, Singer SN, Lekas HM. Resilience and beliefs in the effectiveness of current antiretroviral therapies among recently disengaged low-income people of color living with HIV. Behav Med 2020; 46: 75-85.
3.
Crim SM, Tie Y, Beer L, Weiser J, Dasgupta S. Barriers to antiretroviral therapy adherence among hiv-positive Hispanic and Latino men who have sex with men – United States, 2015-2019. MMWR Morb Mortal Wkly Rep 2020; 69: 1437-1442.
4.
Campbell L, Masquillier C, Thunnissen E, Ariyo E, Tabana H, Sematlane N, et al. Social and structural determinants of household support for ART adherence in low- and middle-income countries: a systematic review. Int J Environ Res Public Health 2020; 17: 3808. DOI: 10.3390/ijerph17113808.
5.
Cholera R, Pence BW, Gaynes BN, Bassett J, Qangule N, Pettifor A, et al. Depression and engagement in care among newly diagnosed HIV-infected adults in Johannesburg, South Africa. AIDS Behav 2017; 21: 1632-1640.
6.
Myers-Walls JA. Strengthening Family Resilience (3rd ed.). J Fam Theory Rev 2017; 9.
7.
Sanga ES, Mukumbang FC, Mushi AK, Lerebo W, Zarowsky C. Understanding factors influencing linkage to HIV care in a rural setting, Mbeya, Tanzania: qualitative findings of a mixed methods study. BMC Public Health 2019; 19: 383. DOI: 10.1186/s12889-019-6691-7.
8.
Ryan S, Hahn E, Rao A, Mwinnyaa G, Black J, Maharaj R, et al. The impact of HIV knowledge and attitudes on HIV testing acceptance among patients in an emergency department in the Eastern Cape, South Africa. BMC Public Health 2020; 20: 1066. DOI: 10.1186/s12889-020-09170-x.
9.
Focà E, Fornari C, Arsuffi S, Vetrano MC, Calza S, Renzetti S, et al. Psychological and emotional impact of COVID-19 pandemic on people living with chronic disease: HIV and cancer. AIDS Behav 2022; 26: 2920-2930.
10.
Chaudhary S, Kakchapati S. Social stigma, discrimination, and their determinants among people living with HIV and AIDS in Sudurpashchim Province, Nepal. HIV AIDS Rev 2022; 21: 230-238.
11.
Dulin AJ, Dale SK, Earnshaw VA, Fava JL, Mugavero MJ, Napravnik S, et al. Resilience and HIV: a review of the definition and study of resilience. AIDS Care 2019; 30: 6-17.
12.
Nursalam N, Efendi F, Tristiana D, Misutarno M, Priyantini D. Family empowerment model based on belief and health related quality of life among housewives with HIV/AIDS. Syst Rev Pharm 2020; 11: 246-251.
14.
Gottert A, McClair TL, Pulerwitz J, Friedland BA. What shapes resilience among people living with HIV? A multi-country analysis of data from the PLHIV Stigma Index 2.0. AIDS 2020; 34 (September): S19-S31.
15.
Emlet CA, Shiu C, Kim HJ, Fredriksen-Goldsen K. Bouncing Back: Resilience and mastery among hivpositive older gay and bisexual men. Gerontologist 2017; 57: S40-S49.
16.
Raniga T, Mthembu M. Family resilience in low income communities: a case study of an informal settlement in KwaZulu-Natal, South Africa. Int J Soc Welf 2017; 26: 276-284.
17.
Kartono R. The role of peer support group to restore the ability of resilience of people with HIV/AIDS (PLWHA). J Unmuh Jember 2019; 119-136. Prosiding ICOGISS 2019: International Confrence On Governance Innovation And Social Sciences.
18.
Penn TM, Trost Z, Parker R, Wagner WP, Owens MA, Gonzalez CE, et al. Social support buffers the negative influence of perceived injustice on pain interference in people living with HIV and chronic pain. Pain Rep 2019; 4: e710. DOI: 10.1097/PR9.0000000000000710.
19.
Halkitis PN, Jaiswal J, Griffin-Tomas M, Krause KD, D’Avanzo P, Kapadia F. Beliefs about the end of AIDS, concerns about PrEP functionality, and perceptions of HIV risk as drivers of PrEP use in urban sexual minority men: the P18 Cohort Study. AIDS Behav 2018; 22: 3705-3717.
20.
Sikkema KJ, Dennis AC, Watt MH, Choi KW, Yemeke TT, Joska JA. Improving mental health among people living with HIV: a review of intervention trials in low- and middle-income countries. Glob Ment Health (Camb) 2015; 2: e19. DOI: 10.1017/gmh.2015.17.
21.
Wouters E, Masquillier C, le Roux Booysen F. The importance of the family: a longitudinal study of the predictors of depression in HIV patients in South Africa. AIDS Behav 2016; 20: 1591-1602.
22.
Erwansyah RA, Rumambo Pandin MG. PLWHA’s perspective on community stigma for getting social support and improving life quality in the digital era. medRxiv [Internet] 2022; 2022.01.17.22269334. Available from: http://medrxiv.org/content/ear....
23.
Popoola T, Rajeswaran L. Making the case for hardiness among people living with HIV in Nigeria. J Nurs Dr Students Scholarsh 2016; 4: 38-45.
24.
Duthely LM, Sanchez-Covarrubias AP, Brown MR, Thomas TE, Montgomerie EK, Dale S, et al. Pills, PrEP, and pals: adherence, stigma, resilience, faith and the need to connect among minority women with HIV/AIDS in a US HIV epicenter. Front Public Health 2021; 9: 667331. DOI: 10.3389/fpubh.2021.667331.
25.
Nursalam N, Yusuf A, Widyawati IY, Asmoro CP. Development model of family empowerment and peer group support in independence of caring on Indonesian’s migrant worker (TKI) infected by HIV. J Ners 2016; 10. DOI: https://doi.org/10.20473/jn.v1....
26.
Turan B, Budhwani H, Fazeli PL, Browning WR, Raper JL, Mugavero MJ, et al. How does stigma affect people living with HIV? The mediating roles of internalized and anticipated HIV stigma in the effects of perceived community stigma on health and psychosocial outcomes. AIDS Behav 2017; 21: 283-291.
27.
Farias DHR, Almeida MFF, Gomes GC, Lunardi VL, Queiroz MVO, Nörnberg PKO, Lourenção LG. Beliefs, values and practices of families in the care of hospitalized children: subsidies for nursing. Rev Bras Enferm 2020; 73 (Suppl 4): e20190553. DOI: 10.1590/0034-7167-2019-0553.
28.
Yu YJ, Li X, Qiao S, Zhou Y. Family relations in the context of HIV/AIDS in Southwest China. AIDS Care 2016; 28: 1261-1268.
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