RESEARCH PAPER
Barriers to disclosure of disease in HIV-infected women: a qualitative study
 
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Submission date: 2017-10-19
 
 
Final revision date: 2017-10-22
 
 
Acceptance date: 2017-10-31
 
 
Publication date: 2018-01-22
 
 
HIV & AIDS Review 2018;17(1):12-17
 
KEYWORDS
TOPICS
ABSTRACT
Introduction:
Disclosure of human immunodeficiency virus (HIV) status reduces high-risk behaviors. Also, non-disclosure of HIV status plays the most important role in the spread of disease and the occurrence of new cases. Given the increasing prevalence of HIV among women and the increase in the transmission of disease through sexual relationships, HIV-positive women are the most vulnerable group in society who are exposed to high-risk sexual behaviors. Therefore we conducted a qualitative study on non-disclosure experiences in Iranian women.

Material and methods:
This qualitative study was conducted in 2015. Fifteen HIV-infected women who referred to Imam Khomeini Hospital Consultation Center for clients with risky behavior participated in this study. The data were collected through a semi-structured interview. Data were analyzed by conventional content analysis.

Results:
Disclosure of HIV status was classified based on the experiences of the participants in two main categories: fear of rejection and community construction of HIV. Fear of rejection has two sub-categories: 1) rejection by partner, 2) rejection by family. The community construction of HIV has three sub-categories: 1) discrimination in society, 2) social stigma, and 3) traditional environment for health services.

Conclusions:
The results of this study showed that women with HIV have a lot of problems in disclosing their disease status. Therefore, interventions for acceptance of HIV patients by their relatives and the provision of counseling services by health care providers are essential for the disclosure of HIV status by infected people.

 
REFERENCES (27)
1.
Center for Disease Control and Prevention, Ministry of Health and Medical Education (Iran). Upublished AIDS data, 2017.
 
2.
Behboodi-Moghadam Z, Nikbakht-Nasrabadi A, Ebadi A, et al. Fertility Desire in Iranian Women with HIV: A Qualitative Study. Iran J Public Health 2015; 44: 1126-1134.
 
3.
Shacham E, Small E, Onen N, et al. Serostatus Disclosure Among Adults with HIV in the Era of HIV Therapy. AIDS Patient Care STDS 2012; 26: 29-35.
 
4.
Amoran O. Predictors of disclosure of sero-status to sexual partners among people living with HIV/AIDS in Ogun State, Nigeria. Niger J Clin Pract 2012; 15: 385-390.
 
5.
Adejumo AO. Perceived HIV stigmatization, HIV/AIDS cognition and personality as correlates of HIV self-disclosure among people living with HIV in Ibadan, Nigeria. Gender Behav 2011; 9: 3854-3869.
 
6.
Saeieh SE, Nasrabadi AN, Ebadi A, et al. Contraception use among Iranian women with HIV: a qualitative study. Glob J Health Sci 2016; 8: 199-207.
 
7.
Eustace RW, Ilagan PR. HIV disclosure among HIV positive individuals: a concept analysis. J Adv Nurs 2010; 66: 2094-2103.
 
8.
Hardon A, Gomez GB, Vernooij E, et al. Do support groups members disclose less to their partners? The dynamics of HIV disclosure in four African countries. BMC Public Health 2013; 13: 589.
 
9.
Kallem S, Renner L, Ghebremichael M, et al. Prevalence and pattern of disclosure of HIV status in HIV-infected children in Ghana. AIDS Behav 2011; 15: 1121-1127.
 
10.
Kennedy CE, Medley AM, Sweat MD, et al. Behavioural interventions for HIV positive prevention in developing countries: a systematic review and meta-analysis. Bull World Health Organization 2010; 88: 615-623.
 
11.
Wekesa E. A new lease of life: sexual and reproductive behaviour among PLWHA in the ART era in Nairobi slums: The London School of Economics and Political Science (LSE), 2012.
 
12.
Chaudoir SR, Fisher JD, Simoni JM. Understanding HIV disclosure: A review and application of the Disclosure Processes Model. Soc Sci Med 2011; 72: 1618-1629.
 
13.
Obermeyer CM, Osborn M. The utilization of testing and counseling for HIV: a review of the social and behavioral evidence. Am Journal Public Health 2007; 97: 1762-1774.
 
14.
Shushtari ZJ, Sajjadi H, Forouzan AS, et al. Disclosure of HIV status and social support among people living with HIV. Iran Red Crescent Med J 2014; 16: e11856.
 
15.
Kalichman SC, DiMarco M, Austin J, et al. Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women. J Behav Med 2003; 26: 315-332.
 
16.
Radfar SR, Sedaghat A, Banihashemi AT, et al. Behaviors influencing human immunodeficiency virus transmission in the context of positive prevention among people living with HIV/acquired immunodeficiency syndrome in Iran: a qualitative study. Int J Prev Med 2014; 5: 976-983.
 
17.
Behboodi-Moghadam Z, Esmaelzadeh-Saeieh S, Ebadi A, et al. Development and Psychometric Evaluation of a Reproductive Health Assessment Scale for HIV-Positive Women. Shiraz E-Med J 2016; 17: e38489.
 
18.
Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004; 24: 105-112.
 
19.
Guba EG. Criteria for assessing the trustworthiness of naturalistic inquiries. Educational Technology Research and Development 1981; 29: 75-91.
 
20.
Goffman E. Stigma: Notes on a spoiled identity. Jenkins, JH & Carpenter, 1963.
 
21.
Wanyenze RK, Tumwesigye NM, Kindyomunda R, et al. Uptake of family planning methods and unplanned pregnancies among HIV-infected individuals: a cross-sectional survey among clients at HIV clinics in Uganda. J Int AIDS Society 2011; 14: 35.
 
22.
Stutterheim SE, Shiripinda I, Bos AE, et al. HIV status disclosure among HIV-positive African and Afro-Caribbean people in the Netherlands. AIDS Care 2011; 23: 195-205.
 
23.
Colombini M, Mutemwa R, Kivunaga J, et al. Experiences of stigma among women living with HIV attending sexual and reproductive health services in Kenya: a qualitative study. BMC Health Serv Res 2014; 14: 412.
 
24.
Kavanaugh ML, Moore AM, Akinyemi O, et al. Community attitudes towards childbearing and abortion among HIV-positive women in Nigeria and Zambia. Cult Health Sex 2013; 15: 160-174.
 
25.
Messersmith LJ, Semrau K, Anh TL, et al. Women living with HIV in Vietnam: desire for children, use of sexual and reproductive health services, and advice from providers. Reprod Health Matters 2012; 20: 27-38.
 
26.
Ayiga N, Nambooze H, Nalugo S, et al. The impact of HIV/AIDS stigma on HIV counseling and testing in a high HIV prevalence population in Uganda. African Health Sci 2013; 13: 278-286.
 
27.
Dos Santos MM, Kruger P, Mellors SE, et al. An exploratory survey measuring stigma and discrimination experienced by people living with HIV/AIDS in South Africa: the People Living with HIV Stigma Index. BMC Public Health 2014; 14: 80.
 
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ISSN:1730-1270
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